HPV Cancer Resources

Helpful Information for Parents, Patients, Partners, and Providers

Helpful Information for Parents, Patients, Partners, and Providers

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Mental Health

Cancer can be every bit as taxing on your mind and soul as it is on your body. It’s not just a physical struggle; it’s a mental one as well. You need to focus on your overall wellness, which includes both your body and spirit. Remember that cancer cases unique: no two are ever exactly alike. No one will have an experience identical to yours. Prayer will help some work their way through this, while mediation may work better for others. There’s no one right answer as to how to make it through this ordeal. Many hospitals have social workers on your care team who can assist you with finding the right resources to help you cope. Maybe join a local cancer support group to share your experience and see how others are coping, or an online social media group that does the same thing? Everyone needs to find his or her own path through this. Having said that, below I have listed a series of links to articles written by other cancer survivors that you might find helpful.

Caregivers play an important role too!
The struggle is not just for the patient, because spouses, family, and other caregivers are also along for the journey. They will often face significant challenges as well, as a person who was previously warm and friendly can be transformed by the disease into someone who is withdrawn, moody, and easily irritated. Caregivers need to find a way to sustain themselves and keep their spirits up, or they won’t be able to help the patient. There are support groups for caregivers as well, so seek one out if you are struggling in this role.

A reduction in treatment can lead to a reduction in depression.
For HPV+ oral cancer patients, a study was done to look at whether or not dose-deescalation (in this case, a lower dose of radiation) was associated with a perceived increase in the quality of life of patients getting less radiation. Not surprisingly, the lower dose of radiation was associated with a higher quality of life because more radiation does more damage to the body. Put another way, depression levels were higher in patients who got the standard dose of radiation compared to those who got the lower dose.
Panwar, A. et al Quality of Life and Depression Symptoms After Therapy De-Escalation in HPV+ Oropharyngeal Squamous Cell Carcinoma: A Nonrandomized Controlled Trial. JAMA Otolaryngol Head Neck Surg. 2024;150(5):429-435. doi:10.1001/jamaoto.2024.0262

Resources for Those Having a Mental Health Crisis

Cancer Care (Professional Support) - www.cancercare.org (800) 813-4673
Counseling and support groups. Licensed psychologists on staff available for free counseling sessions.

Cancer Support Community - www.cancersupportcommunity.org (888) 793-9355
The organization offers quality social and emotional support for people impacted by cancer, as well as a community of support available online and over the phone. 

Imerman Angels (One-on-One Cancer Support) - www.imermanangels.org (877) 274-5529
Provides comfort and understanding for those with cancer, along with their caregivers through a personalized, one-on-one connection with someone who has been there before.

NoStigmas - www.nostigmas.org (888) 816-6403
Peer-to-peer connections to promote mental wellness and suicide prevention. 

The National Domestic Violence Hotline - www.thehotline.org (800) 799-7233 
Has highly-trained advocates available 24/7 to talk confidentially with those experiencing domestic violence, seeking resources, or information, or questioning unhealthy aspects of their relationship. 

National Suicide Prevention Hotline - www.suicidepreventionlifeline.org (800) 273-8255

National Suicide Prevention Helpline Lifeline Crisis Chat - http://chat.suicidepreventionlifeline.org/GetHelp/LifelineChat.aspx 

Suicide Crisis Text Line Text - send HOME to 741741 from anywhere in the USA, anytime, about any type of crisis.

MEDICAL DISCLAIMER

Just to be clear: I am NOT a doctor. The information contained in this website is NOT intended as a recommendation for the self management of health problems, medical conditions, or wellness. It is not intended to endorse or recommend any particular type of medical treatment, physician, or treatment facility. Should any reader have any health care related questions, I strongly suggest you call or consult your physician or healthcare provider before looking into other things on the internet. The information contained in this website should NOT be used by any reader to disregard medical and/or health related advice or provide a basis to delay consultation with a physician or a qualified healthcare provider. HPV Cancer Resources disclaims any liability based on information provided in this website.